Advance Care Planning in Diverse Communities

Click below for some helpful links relating to ACP in Diverse Communities: 

ACP Workbooks/Guides/Videos:

It’s About How You Live In Faith

How to Start Talking About End-of-Life Care (aarp.org)

WORKBOOK A Patient’s Guide to Serious Illness Conversations (theconversationproject.org)

Advance Care Planning can reduce health disparities during serious illness and at end of life.

Persistent race disparities in advance care planning (ACP) are troubling, given Black and Hispanic older adults' elevated risk of disease, some dementias, and receipt of care that may not align with their preferences.

References/Resources/Articles:

"Don't Talk to Them About Goals of Care": Understanding Disparities in Advance Care Planning - PubMed (nih.gov)

Partnering with minoritized communities to reduce health disparities: A focus on advance care planning - Elk - 2023 - Journal of the American Geriatrics Society - Wiley Online Library

Across race, ethnicity, and language: An intervention to improve advance care planning documentation unmasks health disparities - Dutta - 2024 - Journal of Hospital Medicine - Wiley Online Library

How does ethnicity affect presence of advance care planning in care records for individuals with advanced disease? A mixed-methods systematic review | BMC Palliative Care | Full Text (biomedcentral.com)

Across race, ethnicity, and language: An intervention to improve advance care planning documentation unmasks health disparities - Dutta - 2024 - Journal of Hospital Medicine - Wiley Online Library

Center for Elder Law and Justice

HOPE Project

Understanding Health Disparities

National Institute of Health definition of Health Disparity

A health disparity is a health difference that adversely affects disadvantaged populations in comparison to a reference population, based on one or more health outcomes. All populations with health disparities are socially disadvantaged due in part to being subject to racist or discriminatory acts and are underserved in health care.

References/Resources/Articles:

Minority Health and Health Disparities Definitions (nih.gov)

Defining Health Disparities and What They Mean (verywellhealth.com)

Center for Elder Law and Justice